By Max Wallack
Puzzles to Remember
Previously, I had heard about Alzheimer’s patients wandering as a non-goal directed behavior. People with Alzheimer’s disease frequently pace and are restless. It is reasonable that they might wander to an area which is now unfamiliar to them and become disoriented and lost.
The goal-oriented wandering is usually understood as searching for a place and time that the Alzheimer’s patients remembers that gave them peace and comfort.
The type of wandering that my family dealt with was escapist wandering.
My Great Grams, who passed away from dementia in 2007, knew she was “in trouble” (her words), and always felt she needed to escape. She just didn’t understand that the fearful thing that she needed to escape was within her own brain.
Great Grams made many escapes. What she feared most was not having a home.
What she feared was being put into a nursing institution or hospital. She would escape when she was fearful that we, her family, would put her into such a facility. The sad part of this was that her escapes would often make her greatest fears a reality.
The worst of Great Grams’ escapes came early one morning. Grandma and Grandpa were home with Great Grams. Grandma was still sleeping.
Often Great Grams would plan her escape. One way we had a heads up was that we would notice that she would put on her nightgown on top of all her other day clothes, so she would be ready for her escape.
On this particular morning, Great Grams quietly snuck out of the house. The house is on top of a steep hill. Once you walk down the long street, you reach a major street.
Keep in mind, Great Grams was about 92, and she had Paget’s disease of the bone, which, in her case, produced leg pain and a weak bowed left leg.
Well, somehow Great Grams managed to run down that entire hill to the main street. Grandpa noticed she was gone, and ran after her. He didn’t even have time to put shoes on.
Now, Great Grams was a very fearful woman. She had been a fearful person her whole life. She was afraid of traffic, afraid of strangers, etc. Well, this fearful woman started flagging down trucks out on the major road to beg for help because we were “going to kill her”.
Let’s picture that scene. A tiny woman in her 90’s is standing on a major street corner with a man around 60. This man, wearing no shoes, is arguing with the woman.(He was trying to convince her to come home.)
It didn’t take long for a truck to stop and offer help.
Then, the unbelievable happened. Great Grams, this tiny fearful woman with the bad leg, climbed up into the truck with this strange man. Her fears had driven her to do what she feared.
Fortunately, we learned later that the truck driver lived nearby, and he had accurately assessed the situation. He said he felt sorry for Grandpa.
He drove Great Grams to the police station, where she continued her accusations. The police sent her to the hospital by ambulance. She was then transferred to a psychiatric facility for several weeks, before she came home once again.
What Great Grams did, could not be considered wandering, in my mind, until I read the article explaining escapists. Great Grams ran in terror, and she usually ran toward what she feared most. She was an escapist.
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Puzzles To Remember
PUZZLES TO REMEMBER is a 501(c)3 organization that provides puzzles to nursing homes, veterans facilities, and other facilities that care for Alzheimer's and dementia patients. Puzzles To Remember was founded in 2008 by Max Wallack, who recognized the calming effect of puzzles and many other benefits on people suffering from Alzheimer’s disease. Max graduated from Boston University, Summa Cum Laude, in 2015, and from Harvard Medical School in 2020.
Beginning in 2020, Hailey Richman is the Executive Director of PuzzlesToRemember. Since 2011, Hailey has been distributing puzzles to nursing facilities around the globe. Hailey also spends time doing the puzzles with nursing home residents. She always brightens their days. Hailey is also the founder of KidCaregivers.com, where she provides advice for children dealing with dementia in their family members. Hailey has begun a program called PuzzleTime which involves volunteer students going to nursing facilities and doing puzzles with their residents. Max serves as a mentor to the KidCaregivers program.
If you have puzzles that you would like to donate, please contact us at Puzzles2Remember@gmail.com and we will find a location near you where you can bring your puzzles. We can also provide you with a donation letter so that you can claim the value of your puzzles as a tax deduction.
To see a short video from WCVB Ch. 5 "BOSTON STRONG" about Max's efforts on behalf of Alzheimer's patients, click here.
To see a short video about Hailey's Puzzle Time Program, click here.
Beginning in 2020, Hailey Richman is the Executive Director of PuzzlesToRemember. Since 2011, Hailey has been distributing puzzles to nursing facilities around the globe. Hailey also spends time doing the puzzles with nursing home residents. She always brightens their days. Hailey is also the founder of KidCaregivers.com, where she provides advice for children dealing with dementia in their family members. Hailey has begun a program called PuzzleTime which involves volunteer students going to nursing facilities and doing puzzles with their residents. Max serves as a mentor to the KidCaregivers program.
If you have puzzles that you would like to donate, please contact us at Puzzles2Remember@gmail.com and we will find a location near you where you can bring your puzzles. We can also provide you with a donation letter so that you can claim the value of your puzzles as a tax deduction.
To see a short video from WCVB Ch. 5 "BOSTON STRONG" about Max's efforts on behalf of Alzheimer's patients, click here.
To see a short video about Hailey's Puzzle Time Program, click here.
Thursday, December 27, 2012
Why Do Alzheimer's Patients Wander?
Max Wallack is a student at Boston University and a Research Intern in the Molecular Psychiatry and Aging Laboratory in the Department of Pharmacology and Experimental Therapeutics at
Boston University School of Medicine. His great grandmother, Gertrude, suffered from
Alzheimer's disease. Max is the founder of PUZZLES TO REMEMBER. PTR is a project that provides puzzles to nursing homes and veterans institutions that care for Alzheimer's and dementia patients.
Posted by Max Wallack at 7:22 PM
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